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Pie Day 2014

Some of my closer friends and family will already know about Pie Day. Chances are if you’re a recent liker or follower of RemissionPossible you won’t have heard of it. Get ready to embrace a whole new family tradition this Christmas. Pie Day.pie

Now you’re listening. Everyone loves a new family tradition don’t they, whether it be the unspoken rule of not going out over the Christmas week, religiously watching the Queen’s speech or making everyone at dinner table eat a sprout. Christmas truly is a time for making the family do funny, nostalgic and ridiculous things in the name of making more family memories.

This December, save the date for the 27th of December (day after Boxing Day) because we want to see you spend it eating pie.

So why Pie Day, and why I am I making all of you do it?

It started off as a personal family tradition, when my Dad decided if we make use of Turkey Leftovers, we should make use of gravy, sprout, roast potato and other leftovers. After the cold meat day of the 26th, he made a pie of left over Christmas dinner ‘stuff’ and served it up to us. He jokingly named it the pie of all pies, and for that day to be the day of pie making, perhaps never expecting us to go on about it again.

Until the following year, when in December, we watched a Jamie Oliver programme where he was making pie, and I decided we should make it at some point. Seeing as we had pie of the 27th the year before, it was made on that day and the Day after Boxing Day has become Pie Day in my house ever since. My family, the six of us love Pie Day. It is one of our favourite family traditions and I joking have encouraged friends to partake in it, until Christmas 2013 which changed things.

Last Christmas (I gave you my heart) and Pie Day became something new, something beyond just my family. I knew I was going to be in hospital all over the Christmas period and my church and extended family wanted to do something to help, or just do something to let me know they were thinking of me, without having to have the awful ‘So you have cancer…’ talk with me. Pie Day was this outlet.

After my mum text everyone in her phonebook, and Cathy my minister spoke to the congregation we had around 50 people take part in Pie day last year. Most of them sent pictures of their pies, I had a letter off’ve one lady who had typed and specially printed the letter so it had pictures… Some of my best friends got together and had a pie making session with some of them delivered to my house, to put in the freezer so my family could eat without having to cook properly. I had tons of pictures sent to me of friends eating pie- even I it was just the humble mice pie or a big celebrity chef inspired number.

This year I want Pie Day to be bigger and better.

In years gone by, Pie Day was a fun family tradition, which dragged out the proper Christmas festivities out a bit and was massive fun. Last year, Pie Day became something else. It became a known event sure, but it also became a mechanism to show someone you’re thinking of them, and to be a time to think about whose family members or friends you can’t be with this festive season, for any reason.

I would love more people to get involved this year.

Pie Day can be what works for you. It could be you delivering a pie to someone lonely or in hospital. It could be you sitting down with a mince pie and emailing friends and colleagues who need to hear a friendly message at what can be a very hard time of year. It could be a time to invite relatives not close enough to come for Christmas Dinner over and spend time with them. It could be, as it was originally for us, a fun gimmicky tradition to use leftovers. It could be your excuse to buy that giant pork pie. It could be whatever you make it to be.

It may seem like a strange thing, a charityish blogger, urging you all to eat pie the day-after-boxing-day, without asking for donations. That is not what I want. I want it to be a time where you sit back and be with or think of those you love, and just be. Not much of Christmas is like that, not really.DSCN8153

Obviously, I’ll be celebrating Pie Day, just as much as any other festive day, and in much more style than last year. Last Pie Day I was recovering from having my Hickman line in, I still had my chest drain in and I was just a general medical mess. I’m not entirely sue whether I even ate any pie!

I just hope you all decide to join me in eating pie this 27th December. I want to hear your recipes, see your pictures and just spread a bit of love on social media. I know there are some of your reading this who were bitterly disappointed that they for one reason of another were unable to sign up to be a Stem Cell donor. Maybe you could spread the #RemissionPossible love through your pie making skills!

My mum is desperate to have a Pie Day cookbook made, so maybe with your support this year, it could become a possibility for Pie Day 2015.

Thank you for all the recent support, I really hope loads of you get involved!

Keep Smiling (and pie planning)

Emily x

P.S. As always, I want to see you signing up to the register! If and when you have, we want to see you doing your swabs/spits on social media to help spread the word. Send us a pic using #swabspitselfie to @remissionpos or post on our Facebook page (www.facebook.com/remissionpossible2014)

If you forgot (as many do) to take a #swabspitselfie take a picture of yourself with a piece of paper saying that you’ve signed up to become a lifesaver, and why. Unleash that bragging power!

P.P.S you could be a lifesaver.

To sign up…

If you’re 16-30 years old sign up at www.anthonynolan.org

If you’re 18-55 sig up at http://www.deletebloodcancer.org.uk

It’s not over til the Fat Lady sings.

Some bad news today I’m afraid.

It’s something I had always hoped I would never have to blog about, and something more frightening to those affected by cancer than the initial diagnosis. I can’t quite believe that I’m writing this blog.

Relapse, recurrence, end of remission are just three ways to describe it.

Yes, s**tily enough, my cancer has come back.

*inserts crying, swearing, and general negative emotions here*

This is why I’ve been so quiet recently, in blogging and social media.

So, as of last Thursday, when I got sat down with my consultant and told the results of my scan, I am once again a cancer sufferer/patient/whatever. I have Non Hodgkin Lymphoma, again. This time, I’m 17. This time I have a university application to cancel. This time I’m being open about it, broadcasting almost. This time I might need YOUR help. I am of course devastated, I had just applied you University and my life was getting back on track. There’s not much point in moping over it all though.

Now I’m not dying, please don’t think that. There is a plan, there is treatment, and I will get through this again. Second time round though there are quite a few differences in approach.

I’m going to need a Bone Marrow (stem cell) transplant. The very thing I’ve been harping onto you all about infrequently, is now going to save my own life. Seeing as chemotherapy clearly hasn’t gotten rid of my cancer for good, this time we’re bringing out all the weaponry, guns blazing to kick this cancer’s ass, good and proper, and forever. I will have more chemo, and then the transplant.

Some of you may be in the know, but a bone marrow (stem cell) transplant involves the donation of stem cells from someone with matching HLA groups, which ae transplanted into someone who needs the ells, to beat their cancer or other blood disease. The donor will be a living person, who will not suffer any major side effects from donating, just the knowledge that you have helped potentially save someone’s life.

My transplant donation will come from someone selfless, as above. My 15 year old sister will be tested to see if she is a match for me, but this is only a 25% chance. The likelihood is that I will have cells donated from an unrelated donor, a stranger. A hero.

If I have a stranger donor, it will be because they signed to a registry and made a ‘pledge’ that they would donate if they were ever needed.

I’m asking something now of all you reading this blog. Please, if you are able to sign up to be a potential Bone Marrow (stem cell) donor. It will increase the chances of there being a match for me when the time comes, and could help one of the other 1,800 people who will need a transplant this year, in the UK alone. Or you may help someone net year, or the year after, or even someone overseas. The possibilities are vast.

This Bone Marrow donor business, is something I guess most pople will at least have heard about, especially if they are a follower of this blog. The thing is, it’s not just someone needing you to become a lifesaver. Now, it’s me- Emily Clark, the teen pinning these words down, the girl who aspires to be a doctor and loves to sing is the one urging you to join a registry. If it has been something you’ve just scrolled on past or dismissed as irrelevant SIT UP AND LISTEN. It’s real for me now. Really, really real. I hope an emotion within you, whether it be sorrow because of my cancer returning, empathy and pity for ‘that’ girl with cancer, or admiration incites a want to SIGN UP.

There is more concise information on my Become a Lifesaver: Join the stem cell register page, but for now, focus on what your reaction would be if I were your sibling, child, parent, family member or friend (maybe I am) would you immediately sign up? Would you offer to be tested to see if you could donate? If the answer is yes, then please join the register, or at least enquire to find out more. Do it for me, do it for the other 1,800 people.

So many of you, when faced with bad news think ‘I wish there was something I could do to help.’ To put it frankly there is.

If you are 16-30 years old, sign up to be a lifesaver via www.anthonynolan.org

If you are 18-55 years old, be a hero and sign up at www.deletebloodcancer.org.uk

I can’t ask in any other way, and I hope what I’ve done shows quite how important this cause is.

Imagine the impact if everyone reading this signed up, and then got Just One More to sign up, who got someone else to sign up….so on and so forth. We could make a massive difference. I say we, it’s only you who can get the ball rolling.

This has been hard to write, and even harder to post, but I hope it makes an impact.

I’ve been in remission once, and I will be again, hopefully soon. I’ve said before, together we can help #makeRemissionPossible

I’ll keep you all up to date on me, I’m having my Hickman Line put in tomorrow.

Keep smiling,

Em x

Me in Southampton, You Saving Lives

 

Hi there!

Sorry for my recent silence, I’m sure you were all incredibly disappointed to have a blog to red last week, but I have been elsewhere!

I have much to talk to you all about as a result!

First of all, the reason I didn’t blog last week was because I went to

Me holding a starfish!

Me holding a starfish!

Southampton on a university summer school, run by the oil company BG group. To put it frankly…..it was amazing!

I was doing a marine course, and though I’m not looking at doing it as a career, it was incredibly interesting and was just the most incredible opportunity t have what with some of the things we did!

I got to go on a boat which is worth over 1 MILLION pounds and sail around Southampton Water, doing scientific measurements, I got to look at plankton under a microscope….though perhaps most importantly (jokes!) was the fact we got to go Laser Quest (yay!)
Read the rest of this entry

Blog 11- SO much Success

 

Another week, another blog!

This week has been particularly eventful, both with my own stuff and RemissionPossible.

Number 1 and probably MOST importantly is the fact Beatrice, awesome Beatrice…..IS IN REMISSION!!!! YAYYY

She found out last week, and I am sooooo incredibly happy. Gorgeous Bee got me through my own treatment with our Mastercheffing and food cupboard raiding.

Cheering, celebrating and crazy Em dancing aside.

In the past week donations for the gift boxes have been FLOODING in! We have more hats and earwarmers than ever, as well as skincare packs from the UltraCalm Dermalogica range, scarf and bath fizzer gifts from Lush Cardiff, a multitude of books from Orion Books and a load of products from QD stores!!!

The lovely note with the Lush products.

The lovely note with the Lush products.

The people who have donated products will forever become part of the RemissionPossible Family and I will always be grateful to them.

This progress is SO SO exciting for me, as the boxes begin to get ever closer to being able to be launched in TCT Cardiff.

Remember, even though TCT boxes haven’t been launched you can order a teen git box, or an any age information box…RIGHT NOW!

As well as kindly donated products I have received leaflets from Teens Unite Fighting Cancer, Ellen Macarthur Sailing trust, Leukaemia and Lymphoma Research, Teenage Cancer trust, Tenovus……A massive array of leaflets designed to be informative and helpful for people diagnosed with cancer.

As have said above if someone you know has been diagnosed with cancer, whatever age they are, whatever their diagnosis, If you want to give a meaningful, thoughtful, HELPFUL gift, in a time when helping seems impossible, please request a gift box. All we ask is a donation towards shipping and box costs, all items within are donated. We just want to help.

Now onto me! -I have been very busy, hopping around the place for choir concerts! I guess many of you reading this blog who know me will know that I m a member of Torfaen music centre gospel choir. Personally I think this past week has been the best that the choir has ever had!

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ST David’s Hall

On Monday we performed with other greater went groups at St David’s hall, in Cardiff. I LOVE performing there, the atmosphere was great, and I had some delicious noodles for lunch!

The other concert with choir I was preforming at was the Music for Youth national festival in Birmingham. Many of you who are/have been involved in local or regional music groups will know what a BIG DEAL it is to be asked to perform in National festival, so as you can imagine I was SO excited to be going, especially seeing as I missed the regional rounds of the festival due to being in hospital.

Now, not to blow our own trumpets in the slightest, but in Birmingham on Wednesday…. We were AMAZING! Easily the best concert we have ever done!

Finally some other super-duper cool news…..*drumroll Please* I am once again going to be in the news! I will be back on Wales Online AND on ITV wales!!!!!!!

ITV are really interested in RemissionPossible, and I am so happy that this round of Media interest is focussed on RemissionPossible and our work that I’m trying to do… and not a sob story.

The thing is I said Beatrice’s News was probably m important….EXCEPT for some breaking news- Hollie Clark, @helphollie and the innovator of #pantsonhead HAS A MATCH!!!!!

(hollie isn’t my sister by the way, just another Hollie Clark)

This blog isn’t the longest one I’ve written, but my little sister is turning 5 tomorrow and I need to get some shut-eye before her Fancy Dress Party (help me!)

Keep Smiling, chatting about us and being interested (if you own a business gimme a bell!) It’s been a successful week all round!

Em x

Blog 9- Pants on Head

Hi all! Bet I can guess what you’re thinking…. PANTS on HEAD?!?!?!?!

Well watch the video below to find out what the hoosit I’m going on about! (but first read about me!)

So I’ve been busy busy as per usual, but not with RemissionPossible stuff so much….but with SCHOOL!

I’ve gone back into school  properly this week, and have been absolutely LOVING it! It really has to be said I am such a nerd. A part of my school  stuff is doing my WelshBacc individual investigation. Cry. Now, because I am interested in a career in medical research, my investigation needs to look at a topic surrounding this- anyone have any ideas??? If anyone reading this is a research scientist PLEASE help!

Also I auditioned for my school’s annual musical tday- Jesus Christ Superstar. I love doing shows, yet am not particularly drama-ry…. It’s just too much fun!

I have three things tied for top exciting thing of the week-

1. I’m visiting Bristol uni open day tomorrow, and some of their courses sound A-MAZ-ING.

2. Harney Sons & Teas have confirmed they will be sending tea for the gift boxes!

3. The recipient of the Gift box really appreciated it, and said it was the most thoughtful gift they had received. (look back to an earlier blog (7) for more details.

I’ve also been looking into some fundraising ides, including a dress up day for my 6th form!

NOW, onto the VLOG

 

 

HELP HOLLIE #putyourpantsonyourhead @helphollie

Help save the life of this 8 year old girl.

Sign up to be a stem cell donor at http://www.anthonynolan.org (16-30yrs)

OR at http://www.deletebloodcancer.org.uk (18-55yrs)1403208848797

YOU COULD SAVE HER LIFE.

PLEASE consider signing up.

Thanks.

Keep Smiling.

Em x

 

(sorry about the film quality)

World Blood Cancer Day.

Today, May 28th is World Blood Cancer day.

Every year, 30,000 people in the UK are diagnosed with a blood cancer. These are Leukaemia, Lymphoma and Myeloma as well as a few other cancer like blood disorders. That is equivalent to one person every 20 minutes.
Blood cancers are the most common type of cancers diagnosed is children and young people.
I had a blood cancer, Non Hodgkin Lymphoma.Screenshot_2014-05-27-20-28-21-1

At this point you may be asking
“Well what does this mean to me?”
Quite frankly, this means everything. EVERYTHING. Why? Because YOU are the cure for blood cancer. By donating stem cells you can save someone life, you could cure someone cancer.

How? You could join the Stem Cell register. You could become a lifesaver, you could give someone with no other options, the very greatest gift- life!
Anyone with half an eye on social media will have seen the #shake4mike #teamMargot/#swabforMargot campaigns. They both needed a donor from national registers, but originally when searched there was no match. Thankfully they both have matches now- but many people don’t- more people need to join.

If you joined the register, and were found to be a match 9/10 donors donate in a process similar to giving blood. The other 10% donate by having bone marrow drawn.

The bottom line is, though the prospect of donating bone marrow is a daunting prospect before signing up, IT SAVES LIVES and if you were (unfortunately) diagnosed with blood cancer you would not have a choice on whether to undergo such procedures.
So why not choose to do all this ^ and be a LIFESAVER. YOU can help make RemissionPossible.

So do I need to say it again? YOU CAN SAVE A LIFE. (and here, most people are eligible)

So celebrate World Blood Cancer Day with me, and sign up to be a stem cell donor.

If you have ever known someone who has had blood cancer, and don’t know how you can help, THIS is the perfect way!

Get it yet?

SIGN UP, TELL US, TWEET US…

You could change a life. Simple as.

So go on then….do it! It will be worth it, it is something you can be proud of, something you can put on your CV. We will appreciate it, and so will every other person who has ever had a stem cell transplant, or had blood cancer.

Sign up at http://www.deletebloodcancer.org.uk and join a worldwide community of 4 million incredible people!!!!

Keep smiling! (I will be if you sign up!)

Em xx