Category Archives: Inspiration

Did you receive chocolate today of us?

I challenged 5 friends to collect a few chocolate bars.

5 But many more got involved. On mothers day, mums all over the UK will receive a chocolate gift in memory of Emily. Mothers day was the last time we spent any time in the same room as a family of 6. Emy died on 12 March. Mothers Day is hard, so we wanted to do something positive. On the day Emily died, I arrived home on shock and disbelief. On my doorstep were 80 Mr Toms bars ( big Newport County fans in our house) Emily had arranged a donation for the cancer wards. This was typical of her. Few weeks previous it had been 200 bags of popcorn.
Never for herself. Always for others.

Please share your chocolate scoffing pictures #mission21

The idea behind mission21 is to mark Emilys 21st birthday doing what she did best. Inspiring others. So the mission is to get as many people as possible whether they knew Emily or not, to raise £21 in her memory to mark what should have been here 21st birthday. The target can of course be smashed but we wanted to demonstrate everyone can make a difference. £21 is achievable and shows it doesn’t have to be thousands.

Money raised can be pledged for one of our chosen charities.

  • Bloodwise
  • Kids Cancer Charity
  • Look Good Feel Better
  • Dylans Wish.

Alternatively you can raise funds for a cancer charity of your choice. More info about how these charities supported us available on request. We have had a fabulous response of weird and Emily inspired events planned by individuals for throughout 2018. From donating the cost of your favourite shop bought cuppa and putting the kettle on instead. Come dine with me with a group of friends, children’s sleepover, running a half marathon ( 21kilometers) local crafters are donation 21% of profits on certain items. It’s taking off really well. My own event was yesterday at sixteen Brasserie ( previously Mojo) we held a ladies lunch for 21 ladies. Including cocktails great food and fundraising.

In addition each month we will have a mystery mission. You can pledge to accept this mission via social media with a selfie, stating i accept the mystery mission. However you won’t know what it is in until after you commit. The idea behind our mystery mission is they don’t involve fundraising, running or parachutes. They may involve raising awareness. Raising a smile or a random act of kindness. Keeping Emilys memory and spirit alive certainly helps us but we understand it isn’t for everyone.

We are always looking for new and fun ways to raise money. If you have a venue, pub or an idea please contact us via Facebook Mission21.

Donna

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Building a legacy…

It has been the week  of every parents night mare. Yet its not a time we had dreaded because it had never been on our horizon.

Emily didn’t fight cancer. She had cancer twice, reached remission twice. It wasn’t a battle just simply a challenge that she had taken on and won.

Transplant however was a different story.

We believed Transplant was the only option. We still very much believe it was the correct decision.  We will be eternally grateful to the mystery Spanish gent that gave her a chance of life. The  opportunity to have 14 more months with her. His donation gave us an amazing family Christmas all together without a hospital in sight.  Her 18th birthday. Her sixthform leavers ball. A 1 year post transplant tapas night. A family & friends wedding.  Starting university.  Planning a future.

Transplant was tough. The first 100 days quickly passed with an equal mix of time home & in hospital.  But as time went on less and less time was spent at home. 309 days in hospital during 2015 was a strain on everyone but there were very much victories. The medical team would visit early so she could have a few hours to attend lectures to keep up to date on studies.  They very much adopted her wish to get to Reading University and study microbiology.  A dream that occupied her last discussion with her consultant.

The last few days were very sad but we still had no idea what laid ahead.

We remain shocked and confused about why she is no longer here. But we are accepting that the difficulties were simply too great. If there had been more options/ drugs/ treatment then her incredible medical team would have found them. In the end she took control and did it her way. With dignity and respect for herself and those around her she passed away on March 12th. Our hearts are bursting with pride and grief.
The future is filled with her ambitions.  She left plans many plans for us to keep busy. We  intended to continue her legacy.

Her legacy will be to support the building of a Bone Marrow Transport Ward. One in which she had hoped to work one day.  One where patients can have dignity and access to toilets while in isolation.

https://www.justgiving.com/remissionpossible

As a family of five with an amazing  community behind us we will strive to keep her ambitions alive.

We have booked Ball at  Celtic Manor on 22nd October. A Santa Run on 10th December plus many more events are being planned. All support welcome. Every £1 in the pot will make a difference.

But simply the most important thing to remember is she was in remission.  She did not have cancer. Remission was Possible.

“I don’t want you leaving this saying how  inspirational I am unless you are inspired and motivated to do something”.  Emily Remission Possible.

So please get in touch.  Join in. Lets get building a legacy.

Donna, Andrew very proud parents xx